Although I am a very sad person generally at the moment, on the surface I am, of course, functioning pretty well. But every morning I wake up and for that fraction of a second everything is fine, until I remember that we have a new normal in our family life these days.
So yes, I am [...]
Entries from June 28th, 2009
When the going gets tough, the tough get going
June 28th, 2009 · 6 Comments · Playtime
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Eight words
June 25th, 2009 · 3 Comments · FSGS and Nephrotic Syndrome
He’s in a terrible mood: insomnia, bone pain in his feet, kidney pain and prednisolone rages are all combining this morning to make it, well, tricky is the least awful word I can think of to describe it. But if it’s tricky for me today, it’s an ongoing battle for him.
As we drop off Ben [...]
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FSGS genetic test results
June 14th, 2009 · 2 Comments · FSGS and Nephrotic Syndrome
The genetic results are disappointing. William has a genetic ‘abnormality’ on the gene that is responsible for the genetic form of FSGS and while they can’t say that caused his fsgs they think it made him ‘more susceptible’ to developing idiopathic (ie non-genetic) FSGS.
More worryingly, because he has a genetic abnormality it means all our [...]
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Baby-bore: not quite the mother he hoped for, redux
June 11th, 2009 · No Comments · Redux
Another post from my archives, originally posted March 2005. I like this one because I could write something identical now about my current three year old, Ben. Clearly I’m not getting any better at this parenting gig.
Harry, my discerning three year old, knows just how to make me feel like I’m not quite the [...]
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Some things I’ve done that you probably haven’t, redux
June 5th, 2009 · 1 Comment · Redux
The first of my posts from the archives, originally posted March 2005
I’ve seen this all over the place. I’ve no idea where it started or whom to give credit to for it. I’m also way behind everyone posting it, but that just sums up my life really. So, ten things I’ve done that you probably [...]
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