FSGS is a rare kidney disease. It is a condition for which there is no proven treatment. Despite the use of cytotoxic agents, steroids, immunosuppressants and plasma exchange, approximately 50% of those who do not respond to medication progress to renal failure, half within 2 years and the majority within 5 years. Many sufferers will [...]
Entries from March 30th, 2009
Questions no parent should have to ask
March 23rd, 2009 · 6 Comments · FSGS and Nephrotic Syndrome
“Will my son live to 20? 40?” I ask our nephrologist who just a couple of hours earlier had given us the diagnosis that we had been dreading most: FSGS.
He shrugs his shoulders. “None of us knows whether or not we will get run over by a bus tomorrow,” he says dismissively, a flicker of [...]
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