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February 23rd, 2009 · 27 Comments · All Gone Wrong, FSGS and Nephrotic Syndrome

The initial biopsy results are back. My little boy has FSGS and I am completely and utterly heartbroken.

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27 Comments so far ↓

  • Kathy // Feb 23, 2009 at 3:07 pm

    Oh no! I have been checking back to see how things are going and I am so sorry to hear this! I wish I could just make everything better.

    Lots and lots and lots of courage, love, and support. In case it helps to know others think of you and pray for little William, for you and your family everyday.

    Kathy

  • Liz // Feb 23, 2009 at 3:10 pm

    I’m so sorry to hear that it came back as that I’ve been following your progress and was hoping that wouldn’t be the result.

    Thinking of you all and especially little William xx

  • Eva // Feb 23, 2009 at 3:12 pm

    Oh Ella, I’m so sorry to hear this. Hugs to you all.

  • Smartie // Feb 23, 2009 at 3:14 pm

    Ella, I so hoped this would not be the result. Wishing you love and strength over the coming weeks and months and if there is anything I can do please shout.

  • Jeannie // Feb 23, 2009 at 3:16 pm

    I don’t know what to say except how sorry I am and I hope that the experts can find something to help William feel better.

  • Sophie // Feb 23, 2009 at 3:35 pm

    Thinking of you all.

  • Frankie // Feb 23, 2009 at 3:37 pm

    So sorry Ella. Please keep us updated on how William is doing.

  • Jen // Feb 23, 2009 at 4:27 pm

    Thinking of you all Ella and wishing you strength.

  • Richard // Feb 23, 2009 at 4:48 pm

    Ella, email me and let me know who your nephrologist is would you?

  • Jennifer // Feb 23, 2009 at 5:05 pm

    I’m so sorry to hear that this is William’s diagnosis after all your fears about it. Your readers will be here for you and we are wishing you strength to face what you all have to deal with now.

  • angelfeet // Feb 23, 2009 at 7:09 pm

    Oh Ella, I’m so sorry. My thoughts are with you all.

  • Jo Beaufoix // Feb 23, 2009 at 8:36 pm

    I’m so sorry Ella. Sending lots of good thoughts.

  • cesca // Feb 23, 2009 at 10:38 pm

    Oh no! I’m so sorry to hear about that. My thoughts are with you all.

  • Donna // Feb 24, 2009 at 12:26 am

    I am so sorry to see this, Ella. Like the rest of your friends and fans, my thoughts are with you.

  • Lisa in NJ // Feb 24, 2009 at 2:09 am

    I’m so sorry Ella, my thoughts are with you….

  • Suze // Feb 24, 2009 at 10:46 am

    Warm hugs for you, for William and for all your family. I hope that knowing you’re in the thoughts of your readers helps a little. Try to be gentle on yourself while you look after everyone else.

  • memeweaver // Feb 24, 2009 at 11:01 am

    You write a beautiful blog, and it’s very sad to hear you’re going through this. Best wishes to William and to all of you. Take care.

  • Tara@Sticky Fingers // Feb 24, 2009 at 11:02 am

    Hey there
    Just visiting for the first time and it’s a bad time by the looks of things.
    I have no idea what FSGS is so will go back and read through your older stuff.
    I spent a lot of time with my son in hospital when he was 4 as he had to have surgery to remove a blockage in one of his kidney tubes and it was just the worst time. But children are brilliantly resilient and I found the best thing I could do for him was remain strong and upbeat because it seemed to reflect on him too.
    I wish you the very best for your whole family at this difficult time. x

  • Susanna (A Modern Mother) // Feb 24, 2009 at 8:40 pm

    So sorry you have to go through all this. We’ll all send you good thoughts through blogosphere with hopes that William becomes well soon.

  • Sally // Feb 25, 2009 at 3:08 am

    I’m so sorry. If you ever think of anything we, your friends across the Internet, can do to help, please just ask. I’m thinking of you.

  • More than Just a Mother // Feb 25, 2009 at 4:43 pm

    Oh I’m so desperately sorry to hear this news. All I can tell you, as one who has plunged the very depths of despair, is that you will survive this, however hard it may seem.

  • working mum // Feb 26, 2009 at 8:42 pm

    I’m so sorry to hear that. I’ve only just found your blog and at such a difficult time for you. I hope that things go well and that his condition is manageable. All the best, WM x

  • Debs // Mar 1, 2009 at 7:04 pm

    I’m so sorry. Hugs to you and William.

  • Jordan (MamaBlogga) // Mar 13, 2009 at 8:44 pm

    I’m so sorry! You’re in our thoughts & prayers.

  • Deb // Apr 1, 2009 at 6:05 pm

    I am so sorry to hear that. At this very moment I am sitting in the hospital with my 7 year old son waiting for our biopsy results. He too was diagnosed with minimal change disease and has not responded in the slightest to the steroids. I’m hopeful that today’s results will come back with MCNS and they’ll just have to change his meds a bit, but very aware that it could go a completely different way. I am thinking of you and know that I feel your pain.

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