The initial biopsy results are back. My little boy has FSGS and I am completely and utterly heartbroken.
Entries from February 23rd, 2009
Words no parent should ever have to hear
February 23rd, 2009 · 27 Comments · All Gone Wrong, FSGS and Nephrotic Syndrome
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Going to hospital
February 17th, 2009 · No Comments · FSGS and Nephrotic Syndrome
So we are set for William’s biopsy. This entails an overnight stay (possibly two if he has any post-biopsy bleeding) and a general anaesthetic to make sure he stays absolutely still. Because a local anaesthetic and a five year old do not go together in such circumstances.
The hospital is a good distance away from here [...]
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Steroid Resistant Nephrotic Syndrome (SRNS)
February 16th, 2009 · 9 Comments · FSGS and Nephrotic Syndrome
The biopsy is just that: a biopsy. A nuisance but a relatively common procedure. It is the potential diagnosis that is worrying me sick. The paediatrician could not allay my fears when I asked what the statistical results were for the biopsy results in children but Dr Goggle is more forthcoming. He says things like [...]
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Biopsy
February 9th, 2009 · 10 Comments · All Gone Wrong
The words are delivered by our very nice paediatric consultant as lightly as she can muster: ‘William needs a kidney biopsy’ and I know that at this point, statistically, the prognosis for William looks suddenly a great deal worse.
William has made very little progress. In fact the only difference between now and when he was [...]
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Prednisone/prednisolone side effects in children
February 2nd, 2009 · 5 Comments · FSGS and Nephrotic Syndrome
The last couple of weeks we have been to and from the hospital more times than I care to think about for William to be monitored and a couple of times when he has been really poorly. Each time we are there a minimum of three hours, usually with a fractious toddler and baby in [...]
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